Energy

Trip was discharged from the hospital at 10:30 Saturday night and it couldn’t have come sooner for either one of us. They asked us if we wanted to wait until Sunday but didn’t encourage it because they would be short staffed and it would take longer to get through the discharge process Sunday morning. They didn’t have to push us to leave! We were in bed by midnight and thankful to wake up in our own home on Sunday morning.

Saturday was eventful before we left. Trip accidentally pulled out his line just enough where the needle was still suck in his skin but it wasn’t fully through his port so fluid was going underneath his skin instead of in his bloodstream. (That was a really wordy sentence – hope it makes sense.) He had to be accessed again, which is the part that is hardest on him. He was really brave and they were able to get him accessed again for fluids for only 6 more hours. The chemo finished the night before, so we were lucky that wasn’t a factor.

Since Trip has DI, we have to keep up with all his ins and outs while in the hospital, so that means someone holding a urinal and measuring every time he has to go to the bathroom. I was peed on for the first time since he was a baby. He thought it was hilarious! We both got a good laugh and of course he threatened to do it again. The next time he actually peed on himself, which really made him mad. It was his first lesson in karma. ☺

Trip says some funny and also profound things that make me smile. I say, “Geez Louise” often. Trip says, “Geez Little Wheeze.” Friday night Colson was ordering Trip a pizza to the room and Trip told him that he wanted cheese and “no Halloween guys” which we figured out means no jalapenos. I mentioned that I made a mistake. Trip told me that was okay because everyone makes mistakes and if we don’t make mistakes we can’t learn and grow. (This is the same kid that talks about cigarette smoking?? I’m pretty sure he just knows how to get my blood pressure up.)

Trip’s counts looked great yesterday with the exception of his hemoglobin, which is usually low. We have to watch for headaches, fatigue, just overall feeling crummy. There’s always the possibility of him needing a blood transfusion, but so far he has only had to have one since the beginning. The nurses always comment on his energy level and wonder how it’s possible to have so much energy with a low hemoglobin level, so we’re thankful he feels good regardless of the numbers.

Sunday Trip got to go to Main Event with his god-brother and had a blast. He stayed all afternoon and played harder than he has in a long time. Monday, we took a blanket outside and watched the blue sky, small clouds and let the wind blow. Trip kept saying what a beautiful day it was. Yesterday, he was able to go and stay at his gym class for the first time in months (he usually gets too tired to finish it) and we went to Colson’s softball game last night. We are focusing on the positive and making the most of every moment, even the small ones. Everyday he has a job to say, “I am healthy and well.” Today he said, “I am healthy and well and happy.” I love that kid.