Trip had the biopsy last week and the results confirmed LCH. We will start at-home chemo this weekend. The doctor is willing to give it two cycles (3 weeks) to see if there is any improvement. If not, we will reevaluate from there. The doctor is determined that it will not spread this time. I’m determined too, but I wish she would be here to help me. She’s leaving Children’s at the end of September… oh boy am I going to miss her.
I forgot to mention in the last post that Trip broke his finger this summer. A broken finger pales in comparison to LCH, but we had to see a specialist last week because of how LCH has affected his bones in the past. The good news is it should heal beautifully in time and LCH will have no impact on the healing process. It only hurt him the first few days and doesn’t even bother him now. He’s one tough cookie.
Trip has an appointment on Thursday with his endocrinologist, who does not know the LCH has returned. The DI treatment shouldn’t change with this latest development unless we have to move to a stronger therapy at some point, but I’m still glad we are seeing her now to be sure.
I’m so thankful he can continue to go to school and we can tackle chemo on the weekends. I know he would hate to miss recess. ☺ Trip’s godmother reminded me of how I need to approach this situation. She said, “Mand, you gotta keep living life.” And she’s absolutely right. For me, for Trip, for our family life keeps going. There may be some limitations, but we need to live thankfully and joyfully in as many moments as possible. The goal is to approach this as a simple inconvenience instead of wrapping it up in emotional turmoil. Hopefully we can do it taking one day at a time.
