Sunday, December 15, 2013

Christmas Blessings

We are blessed. We are so blessed. Tuesday my phone did not hold a charge after Trip & I left the doctor because we had so many friends & family call to ask about the scan results. I was on the phone and texting the majority of the night – so much so my phone kept dying. Thank you, my friends, for remembering and checking on the results. We are so blessed to have so many people care for us and think of Trip’s wellbeing.

The MRI showed nothing new or spreading, which is great news! We are so thankful for that. To get a stable report on the brain and orbital area gives me such relief. There are areas on his femur, arm and (possibly) jaw that appear to be active lesions and will need to be watched. He has had lesions on all areas in the past, so we know that these areas will show up on the skeletal survey for some time. When Trip was first diagnosed he had a huge bump on his skull that eventually turned into a huge hole in his skull. We have watched that lesion for years on the x-ray and now it is completely gone - a slow process but at least it is gone now. The thing with x-rays is they can show the damage to the bone(s) but it doesn’t necessarily mean there is active disease in those areas. A PET scan would be the only way to know for sure where the active disease is in his body, but since he has already been exposed to so much radiation we don’t think one is necessary at this time.

We are truly relieved and so thankful. While Colson & I would love to hear there are no lesions anywhere and nothing is showing up on any of the scans, we will take a “nothing new or spreading” report. We have so much to be thankful for and are so thrilled Trip can stay in school and enjoy his active social life. He will stay on the at-home chemo treatment for the foreseeable future, but we will gladly handle that. He finished a round this weekend and other than being tired and spitting methotrexate pills all over the bed at midnight, it went smoothly.

I hope everyone has a wonderful Christmas with loved ones. Let’s hug our little ones and big ones tightly and always show them how much they are loved.

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